When: February 21st
Where: Teal Bend Golf Course
Time: 9 a.m. – 4 p.m.
The Jenna and Patrick Foundation of Hope is a voluntary, nonprofit organization made up of parents, medical professionals, friends, relatives and others who are interested in fighting Cystinosis. Our vision is a world where Cystinosis is no longer a threat to a full and productive life for children and their families. Families affected by Cystinosis will not be devastated by the diagnosis or its impact on their lives. Individuals with Cystinosis will have the same chance at life as their siblings and peers to run and play, hope and achieve, and live out their dreams.
To Register, visit the event website: